Experiences
creating evidence.

A new way to contribute to endometriosis research and awareness by capturing what we live through.

freQendo is a platform in development that aims to transform patients' real experiences into knowledge that is useful for them and for those who research and treat the disease.

Will you help us build it?
Patients

Your experience matters.
And it can help build something better.

If you live with endometriosis, you know how hard it is to understand what's happening to you, to anticipate it, or to explain it.

freQendo starts from a simple idea: that what you live through shouldn't be lost, and can become useful knowledge — for you and for the advancement of research.

We want to build it with you, understanding what makes sense to track, when to do it, and how to make it feel effortless rather than a burden.

What does participating in this phase involve?
  • Exploring an early version (prototype)
  • Sharing your feedback through a short survey
  • Helping us understand what it would need to be truly useful
How does it work?
  • We're sharing the prototype gradually with a small group of people
  • If you sign up, we'll show you the platform or send you access to explore it
  • You'll be able to explore it at your own pace and share your experience through a short survey

You can participate simply by sharing your opinion (approx. 30 minutes), or get more involved in how it evolves.

→ I want to participate
Clinicians & Researchers

There is information that exists
but doesn't make it into our data records.

What patients experience between visits — the variability, the patterns, the context — is difficult to capture in a structured way, free from recall bias and with enough daily volume to better understand what's happening.

freQendo proposes a model to collect that information in a structured, longitudinal way, with the active involvement of patients themselves.

What we're looking for in this phase
  • Give clinical meaning to the data
  • Identify what is relevant in real clinical practice
  • Challenge and improve the model
How the collaboration works
  • We work with a small group of professionals
  • We'll share the approach and early data with you
  • You'll be able to explore the model and contribute your perspective from clinical or research practice
→ I want to collaborate
The proposal

It's not another tracking app.
It's a different way to build
clinical evidence.

Personal and collective knowledge that contributes to the research and awareness of the disease. The proposal is simple, but ambitious: turning lived experience into useful evidence.